Friday, 27 January 2017

5 Things I Wish People Understood About Chronic Illness

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Having a chronic illness is one of the hardest things I have ever had to experience, and I didn't realize how many people suffered with them until I joined this community. I also didn't realize how much discrimination and judgment surrounded it too. Most of this stems from the unknown if people don't understand and don't take the time to educate themselves then it's hard to see what we have to deal with. However, there are in fact, a few who just like to make judgement on other people and don't have any interest at all in the struggle for a 'normal' life.

Wednesday, 25 January 2017

5 Things I Learnt That Help My Anxiety

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Anxiety is completely mind boggling to put it lightly. It can range from mild to severe affecting different aspects of life. It can feel very isolating, the mental symptoms such as worrying and paranoia alone are awful but then adding in the physical symptoms it can become unbearable, at its worst it can be debilitating. There are many professionals that will tell you lots of different things. ways to cope, what not to do etc but recovery is a very personal experience. While what these professionals are offering is proven to help it is entirely up to you on whether you think it's best for your situation.

Monday, 23 January 2017

My Review of Rivers Of London by Ben Aaronovitch

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Author  — Ben Aaronovitch
Genre — Urban Fantasy
Published — 2011
Wikipedia Synopsis [1] – The novel center’s around the adventures of Peter Grant, a young officer in the Metropolitan Police; who, following an unexpected encounter with a ghost, is recruited into the small branch of the Metropolitan that deals with magic and the supernatural.

Peter Grant, having become the first English apprentice wizard in over seventy years, must immediately deal with two different but ultimately inter-related cases. In one he must find what is possessing ordinary people and turning them into vicious killers, and in the second he must broker a peace between the two warring gods of the River Thames and their respective families

I give this book 4.0 out of 5.0 stars.

STOP READING if you do not want any spoilers.

Friday, 20 January 2017

My Thoughts About Body Image In Today's Society

I’ve started to think about how men and women think about themselves. I’ve never been very confident about the way I look, but I’ve always tried to make my personality bolder to take away the pressure from looking perfect, by that I mean I managed to get myself into the popular group of girls who all looked amazing and had boyfriends at some time in school, by just being myself and adding to it by coming across more confident than I was. I was happy but I knew I didn’t look the way everyone else did.

Wednesday, 18 January 2017

The Ramblings Of My Mental Illnesses

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TW: Depression, Self Harm, Death
So I have suffered from some form of mental illness since I was 12. It started as anxiety then developed into depression and anxiety and now it’s just a big ball of messy illness that runs my entire life.
I have missed parties, not gone to university, missed countless days of work etc. just because of an illness that cruelly controls my brain. So I’ve developed my own ways of dealing with it, in particular, writing. When I’m in my darkest days when depression is crushing my every hope and my anxiety is keeping me confined to my bed, my ‘safe’ place I write. I say everything that's on my mind to just get it out, and it works. So now that I’m on the road to recovery I thought ‘hey why not let others read it’ even if this just gives people the idea of what it feels like to have these feelings within your head.
So here goes….

Monday, 16 January 2017

Open University And It's Inclusion Of The Disabled

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Many people, young and old all go through some sort of education but not everyone chooses to go on to complete higher education certificates. Having a disability can seem life-limiting; chronic pain, exhaustion, stiffness etc and this can put many people off doing any kind of education but the Open University is an excellent choice for those wanting to do something with their time or get an education. 

The idea of the OU is it is a distance learning university. This means you can complete the degree in your own time and at your own home. Student loans can pay for the course like at a usual university and it can be completed part time or full time. There are about 120 qualifications to choose from and they even offer some free courses on their website OpenLearn. 

Friday, 13 January 2017

So What Can I Say To Someone With A Chronic Illness?

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Following on from my post about ableism (Dealing with ableist comments) it seemed only fair to do a post on what can be said and what's helpful to us. 

Yesterday my mum said you're so sluggish lately, you need to do exercise that'll make you feel better' now my mum isn't being mean she just doesn't understand how my condition affects me and she's just trying to be helpful. When I told her about her comment being ableist she said 'well what can I say to you then' and it's a valid point. Knowing about your condition doesn't necessarily make it any easier when it comes to trying to help someone and not upsetting or offending them. We all know that there is a very thin line between offence and advice and plenty of people find it hard to differentiate between the two. I have seen so many posts about what you can't say so here's what you can! 
I've made a list of 8 of the best things people have said to me before.

Wednesday, 11 January 2017

My Review of The Fault In Our Stars by John Green

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I love reading, and I do it a lot so it's only fair I review my most recent books I've read! Reading is a great way to distract yourself and keep yourself entertained when your body is fighting against you. Coping mechanisms are important for whatever illness and finding a few that suit you is crucial. 
Author – John Green
Genre—Young Adult fiction
Published—2012
Synopsis –Despite the tumor-shrinking medical miracle that has bought her a few years, Hazel has never been anything but terminal, her final chapter inscribed upon diagnosis. But when a gorgeous plot twist named Augustus Waters suddenly appears at Cancer Kid Support Group, Hazel’s story is about to be completely rewritten.
I give this book 3.0 out of 5.0 stars.

STOP READING if you do not want any spoilers. 

Monday, 9 January 2017

Dealing With Negative Comments From Ableists

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You're fat, why are you in that chair, why can't you just cheer up, just stop hurting yourself, just stop eating, just start eating, do exercise, you're so lazy, you are always sleeping, you don't need that disabled space you don't look disabled, its only pain. Just stopThese are just a few of the comments I've had and I've heard other people get told.

So first things first what is ableism? Ableism is the discrimination by individuals who are non-disabled, resulting in discrimination or social prejudice against people with disabilities. ([1]  Ableism, Wikipedia) Yes, unfortunately, this term exists and yes, unfortunately, this is a big problem. In life you meet all sorts of people, from many different places and many different walks of life and in every case you hope these people are good, down to earth, non-judgemental, caring people and for the most part they are, apart from that minority. You know the minority I'm on about; those who ridicule and bully people who are different. In a world where the ever-increasing pressure to be perfect is everywhere disabled people (whether it's an invisible disability or visible) are routinely commented on. This isn't just about looks, it's about your lifestyle and giving you 'advice' about how you should live or manage your condition or even just small comments that shouldn't mean anything but deep down to you they do. 

Friday, 6 January 2017

Advice To Help When Talking To Your Doctor

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So you've been plagued by symptoms and its started to worry you, you think it's time to see the doctors. This can be an extremely scary and confusing time. If you are like me, you symptom spot everything and always check Google. DON'T! I can't tell you the number of times I've had cancer, brain tumours, kidney failure, heart attacks etc which has turned out to be basically normal things like colds. My sister and I were notorious for self-diagnosis when we were young. Paranoid all the time that we were dying. Needless to say, we were always wrong, I was actually a very healthy child. 

So I've made a list of some tips to remember when going to the Doctors...

Wednesday, 4 January 2017

How I Manage My Own Battle With Sleep

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So if you suffer from Fibromyalgia you may already know that the relationship with us and sleep can be a toxic one. We either cannot go to sleep, we have disturbed sleep, we cannot wake up or we don't have a refreshing sleep (we wake up still tired). This isn't just limited to fibromyalgia however, there are a huge amount of people that have problems with sleep and exhaustion. In the UK various sleep reports about the population are released which is alarming to read. 
Here are just a few: 
  • Nearly half of those in the UK are getting just six hours sleep or less a night. And an alarming four out of five people complain of disturbed or inadequate sleep. (Sleep Council ‘Toxic Sleep’ survey, January 2011)
  • 1 in 3 young people achieves just 4 to 7 hours’ sleep instead of the recommended 8 to 9 hours. Almost a quarter admit they fall asleep watching TV/listening to music or with other machinery still running more than once a week. (Sleep Council Junk Sleep study on 1,000 12-16year olds, 2007)

Monday, 2 January 2017

Is This The Start Of My Own Disability Journey?

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An Open Letter About The Start Of My Blog. 
I woke up one morning, beginning of May 2016, it was raining like usual and I could already feel the pain in my back and legs. I had just woken up from a 6-hour sleep: the usual waking up a lot, restless legs and not being able to actually fall asleep. I don't know what was different about today; was it the pain that seemed to be worse than usual, was it the fact I was exhausted even though I'd just woken up or was it the worry that maybe this wasn't normal. Straight away I phoned work, I explained I wouldn't be in and then I phoned my doctors. After the usual 10 minutes wait for the receptionist to answer I was bombarded with the usual "is it really urgent" "do you really need to be seen today" "maybe just rest" before I managed to convince her I wanted to be seen today.